Support Toolkit

Help Us Spread the Word

Use these ready-to-send templates to help raise awareness and support for families affected by GRN-FTD.

Email your network

Use this pre-written template to email your personal connections to support our cause.

Sample letter

Dear X, I’m reaching out to ask for your support for a cause deeply important to me and my family: GRN-FTD, a genetic form of frontotemporal degeneration caused by a progranulin (GRN) mutation. Today, there are still no medications that can slow or stop the progression of this aggressive and often early-onset disease. Far too often, individuals with FTD are misdiagnosed with psychiatric conditions or other types of dementia, leading to treatments that can harm them as well as missing out on the critical opportunity to learn about clinical trials related to their accurate diagnosis. If you’d like, you can personalize this message by briefly sharing how GRN-FTD has touched your life, your family, or someone you know. CureGRN is committed to raising awareness, fostering global collaboration, and advancing the research needed to develop effective treatments and, ultimately, prevent GRN-FTD. Your donation will help CureGRN strengthen its advocacy for families and advance the path toward finding a cure. Kind regards, X

Share on social

Use this sample post to spread awareness and encourage your network to support CureGRN this giving season.

Sample social media post

This giving season, help me (or my family) push toward a cure for GRN-FTD, a genetic form of frontotemporal degeneration (FTD). No medications exist to slow or stop its devastating results. FTD affects thousands of families around the world. Clinical trials are underway, and momentum is building. CureGRN is fighting every day for GRN-FTD families. Your support of CureGRN’s advocacy efforts fuels awareness, collaboration, and research that can change the future of GRN-FTD. Please go here, to donate and stand with us.