In the cracks of ancient stone, where life should not flourish, a small purple flower takes root. It does not wait for ideal conditions. It rises, reaches toward the sun, and blooms with bold resilience.

This flower is more than a symbol of nature’s persistence.It reflects the spirit of the CureGRN  community of families, caregivers, clinicians, and researchers who continue to move forward despite immense challenges.

Resilience in the Harshest Terrain

Frontotemporal degeneration (FTD) caused by progranulin (GRN) mutations often begins with subtle signs and uncertainty. While some diagnosed with GRN-FTD will present with behavioral changes, which are often misdiagnosed as psychiatric disorders, others will present with language challenges. No FTD path is alike, whether caused by a progranulin mutation or other cause, but the FTD climb can become steep and unrelenting. Yet within this landscape, a profound strength emerges:

• Families creating moments of joy and dignity in the hardest circumstances
• Researchers advancing medical knowledge to take one more step closer to a cure
• Advocates turning personal stories into global beacons to create awareness and action

Like the purple rock flower, the CureGRN community continues to grow, even in places where hope is not expected to be found.

Why CureGRN Exists

We are a dedicated advocacy hub for our families and work with our medical allies and aligned organizations to amplify our collective impact. We share the latest in research, highlight family voices, and build collaboration across science, medicine, and advocacy. Our goal is simple: uniteGRN families, advance understanding, and pave the path to a cure for GRN-FTD.

Together, We Bloom

Whether you are a family member seeking answers, a researcher focused on solutions, or an ally working toward progress, you are part of our story. Your voice, your expertise, and your engagement are the roots that help this community thrive.

Call to Action

• Families and Caregivers: Share your story. Your experience can guide others and strengthen our shared mission.
• Researchers and Clinicians: Let’s stay connected with updates and collaborative opportunities. Your work brings us closer to treatments and cures.
• Advocates and Supporters: Help amplify this message.Awareness drives funding, discovery, and change.

Let us grow hope from stone. Together, we will change the future of FTD. We are powered by passion, united in purpose, and driven by the quest for a cure.

Stay connected and help spread awareness. Follow us on social media, share our mission, and join our movement of transforming hope into action.