Your Voice. Your Story. Your Power.

At CureGRN, we know that progress toward a cure is driven by people. Every family member, caregiver, researcher, advocate, and ally in our community can shape the future of GRN-FTD.

Whether you are living with a GRN mutation, caring for someone who is, or simply committed to advancing science and support for families, you belong here. Your involvement matters more than you might realize.

If you have ever wondered, “How can I help?” —here are four meaningful ways to get involved and make an impact today.

📣 1. Raise GRN-FTD Awareness

You do not need to be a scientist to change the future of science.

As an advocate, you can use your lived experience to educate, connect, and empower others. Family voices bring urgency, humanity, and clarity to research and advocacy efforts in ways that data alone cannot.

How can you advocate?

• Share your story to reduce stigma and isolation within the GRN community.
• Attend or speak at conferences, fundraisers, and awareness events.
• Help newly diagnosed families navigate their first steps with understanding and compassion.‍
• Amplify CureGRN in your community and online by sharing our social media posts.

Your perspective can inspire action, influence research priorities, and remind the world why this work matters.

Awareness saves time, reduces misdiagnosis, and brings more people into the movement. Many families still struggle for years before receiving an accurate diagnosis. Spreading the word can change that.

You never know who might be affected, searching for answers, or inspired to support our mission. Your voice can reach someone who desperately needs it.

🔬 2. Participate in Observational Studies or Clinical Research

Research is the backbone of progress toward treatments and, ultimately, a cure. Participation in studies is one of the most powerful ways families can contribute.

Whether you are a carrier, an affected individual, or a healthy family member, your involvement helps researchers better understand GRN-FTD and its progression.

You can learn more by:

• Visiting the Progranulin Navigator to explore GRN-related clinical trials.
• Participating in the ALLFTD Study, hosted by AFTD. These studies are for symptomatic patients and those at-risk. The purpose is to help researchers understand the real-world impact of FTD over time.
• Visiting the FTDRegistry. The FTD Disorders Registry is a powerful tool in the efforts to create therapies and find a cure.

Every participant moves the science forward.

🧬 3. Become a CureGRN Champion

CureGRN Champions are advocates, educators, and ambassadors for our mission. Some work publicly, while others contribute behind the scenes. There is a place for you whatever your interests.

Champions help amplify awareness, support families, and accelerate momentum toward treatments.

If you would like to move the needle to end GRN-FTD, email info@curegrn.org to learn more about becoming a CureGRN Champion.

💰 4. Fund Our Vision to End GRN-FTD

Every dollar invested in CureGRN brings us closer to treatments, better support for families, and ultimately a cure. Your generosity fuels research, advocacy, and community programs that directly impact lives.

What way works best for you to support our mission to end GRN-FTD?

• Make a one-time donation or set up a monthly contribution.
• Launch a personal fundraiser in honor or memory of a loved one.
• Partner with local businesses, schools, or community events.

From bake sales to a community booth, every effort makes a difference. Together, we can accelerate progress.

👉 Make a tax-deductible donation here. 

💡 You Are Not Alone

The GRN community is growing stronger, more connected, and more determined every day. Families, researchers, and advocates are coming together like never before to push toward meaningful change.

Wherever you are in this journey, there is a place for you at CureGRN. We are grateful for you, inspired by you, and committed to standing beside you.

Together, we will keep moving the needle toward a future without GRN-FTD.