Katie Needle became involved in the GRN-FTD community after her father, Edward, was diagnosed with GRN-related behavioral variant FTD in 2021, following years of misdiagnoses and unexplained symptoms. In 2022, shortly before his passing, Katie learned that she, too, carried the GRN mutation. Since then, she has dedicated herself to advocacy, education, and supporting efforts toward a cure.

Professionally, Katie works in the healthcare field as a radiation therapist, providing care to cancer patients. Her personal and professional experiences have given her a deep understanding of the physical and emotional impact of long-term illness on individuals and families.

Outside of her work and advocacy, Katie is passionate about social justice and civic engagement. She enjoys crossword puzzles, trivia, and time with her beloved cat, Lola. She continues to connect with and support others in the FTD community, raising awareness and offering hope.