GivingTuesday is a global focus on generosity, a time when people everywhere come together to uplift causes that matter. This year, we invite you to stand with CureGRN. We are a patient advocacy organization dedicated to accelerating research, awareness, and support for families affected by frontotemporal degeneration (FTD) caused by a progranulin (GRN) mutation.

Why Your Support Matters Right Now

CureGRN is powered by families, caregivers, scientists, and allies who refuse to accept that FTD will remain a devastating and underrecognized disease. This Giving Tuesday, you can help us with a special chance to build awareness and drive support and research even further.

One of our CureGRN champions has the rare opportunity to travel to an international neurology conference this spring. Her family’s medical case is groundbreaking:what physicians once believed to be a sporadic case of FTD was proven to be genetic, caused by a GRN mutation. These pivotal findings offer the potential to reshape how clinicians present diagnosis information, including incorporating genetic counseling and testing as a standard practice of care to discuss with all FTD patients and their families.

This conference is where neurologists gather. It’s where awareness can grow and spark change in the clinical care offered to patients diagnosed with FTD. It’s where her voice — and our mission — can reach the global stage of those who influence patient care.

We need your help to make this happen.

How You Can Support CureGRN This Giving Season

Every action today fuels progress. Here are four ways you can make an immediate impact.

1. Donate

All US-based donations are tax-deductible through our fiscal sponsor, 501c3 Rare Village!

2. Write Your Community for Support

A personal note goes a long way. Share our mission with your friends, colleagues, and communities. Let them know why CureGRN’s work matters and invite them to join you in supporting us.

Want to get started? Here’s a sample letter/email.

3. Spread Awareness on Social Media

Help amplify our mission. Remember to tag us on any posts on Instagram, LinkedIn orFacebook about CureGRN, share why this work matters to you, so others can learn and help support our mission.

Ready to post? Here’s a sample post.

4. Get Involved as a CureGRN Champion

Whether it’s joining our advocacy efforts or volunteering your skills, your energy strengthens our cause. Every voice helps us push science, awareness, and hope forward.

We Can’t Do This Without You

In this season of giving, we’re asking for your support to ensure that groundbreaking research reaches the people who need it most and can make the most impact with this knowledge. Your generosity helps expand awareness among neurologists, fuels life-changing research, and brings us closer to a future where FTD caused by a GRN mutation can be stopped.

Together, we can build momentum.

Together, we can change what’s possible.

Together, we can cure GRN-FTD.